In Haryana, 8 -month -old innocent youth of Hisar are struggling with the world’s most dangerous disease. The disease is spinal muscular atrophy type-1 ie SMA. Which is injected with ₹ 14.50 crore to treat it. This injection also meets Geneva in Switzerland
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Yuvansh’s father is a constable of Haryana Police. He is currently posted in the cyber branch of Fatehabad. He has sought help from the government. At the same time, the police department is also helping in the treatment of the son of its fellow employee.
Kaithal’s SP Aastha Modi issued a letter asking the policemen to help. Apart from this, Congress MLA Chandraprakash from Adampur in Hisar has also written a letter to CM Naib Saini demanding government help.
Photo of young man with mother Kiran and father Rajesh.
Know when the family came to know in 5 points …
- Son was born on 9 October 2024: Rajesh said that he was married on 23 April 2023 with a Kiran of village Sandalna in Barwala area of Hisar district. There was a son on 9 October 2024, named Yuvans. When the young man turned two months old, he was not doing activity like normal children. He showed a bone specialist in Hisar. The first doctor said that everything is fine, there will be a little late development.
- Voices started coming in the son’s chest: Rajesh told that two-three months and the voice started in the son’s chest. After this, another doctor of Hisar was shown and some improvement took place in a month. Also kept admit in the hospital for a week. This led to more improvement. But when he showed the doctor again, he advised to show the Higher Center at PGI or AIIMS.
- PGI sent if SMA test done: Rajesh said that after this, in the month of May, he was shown in another private hospital in Hisar, then the doctor got the SMA test done. The report of the Test on 18 May received a spinal muscular atrophy type-1 disease. The doctor suggested that Chandigarh starts treatment in PGI or AIIMS.
- PGI taken on May 22: Rajesh told that on 22 May he went to Dr. Renu Suthar in PGI. Dr. Renu said that neurons are formed in the spinal cord. Cells are formed from these neurons, which grow the body. Neurons are not formed in case of SMA disease. The body does not grow when neurons are not made. The body dries up.
- It is necessary to get injected by the age of two: Dr. Vinita Jain, a pediatrician at Aadhaar Hospital of Hisar, says that it is necessary to get an injection of ₹ 14.50 crore to the age of 2 years. Everyday the disease increases. Therefore it is necessary to get immediate injection. After the injection, treatment will continue for two to three months.
What did the family do to save the son’s life …
1. Can’t get so much money by selling everything Constable Rajesh said that he is originally a resident of village Jakhod Kheda in Adampur area in Hisar district. His father Mahavir is a farmer, while mother Sulochana Devi is a housewife. The younger brother is Manish, who does farming. Wife Kiran is a clerk in the Food and Supply Department in Fatehabad itself.
The family has three acres of land. According to Rajesh, the doctor claims that this injection will cause 90 percent recovery. The remaining 10 percent recovery will be done through physiotherapy and physical activity. Even if you sell everything, you cannot collect such a huge amount.
2. Campaign started for three days, 27 lakh rupees gathered To save the life of the youth, funds are being collected by the Impact Guru Fund Rising Group. Police employees and general public are supporting in this. 27 lakh rupees have been collected in three. Adampur Congress MLA Chandraprakash has written a letter to CM Naib Saini demanding help in the treatment of the youth. At the same time, Kaithal’s SP Aastha Modi has issued a letter and urged all the police employees to give a day -long salary to help the youth.
Request from CM to PM Rajesh has also tweeted to Prime Minister Narendra Modi, CM Naib Saini, actor Salman Khan, Tata Foundation for help. Actor Sonu Sood, Transport Minister Anil Vij, MP Naveen Jindal, Industrialist Gautam Adani have also requested help from the Union Ministry of Health. Apart from this, Rajesh has demanded that this genetic test should be made mandatory for the government, so that it is known in time. If the child is known at the time of conceived, the treatment becomes easy. The government should also make provision to install injection free at the government level.
The plea made by Rajesh.